Simone Mangos - Growing up with a limb difference - my personal story

I was born in Australia to immigrant parents who themselves came from very difficult backgrounds having emerged from WWII Europe.  In 1960's Australia there was basically no support at all for them in any from.  No family members, no social workers or councilors, no health insurance and no community assistance.  Having very little money and even less education didn't help matters either. 

Simone Mangos

Basically being born with a significant limb difference made me feel like I was some sort of alien.  I always remembered my birthday practically as a day of mourning.  A day to forget and to bury, certainly not one to celebrate. 

The break through came for me at the age of 25.  And no, it was not a love relationship or because I was able to finally say no to the ongoing medical experimentation.  It was meeting the first person ever, everly, who told me that my limb difference simply didn't matter and was just a part of who I am. 

This very simple signal of acceptance began to thaw part of the extremity that had encased my life for far too long.  My single message to parents of children with limb differences is first and foremost to love that child unconditionally - she is perfect just as she is.  Suspend judgement and allow the child to show you how ingenious he or she is and will grow up to be.  How fortunate we are today to have a facility like Dysnet.  An immediate support group, an up to date resource for all medical, social and technical enquiries.  A wonderful community of extraordinary individuals ready to assist, support and share all the information one could possibly need as a parent of a limb different child.  Let your Chile surprise you. 

Simone Mangos,
Berlin March 2015