I'm Geoff Adams-Spink and I work for an organisation called EDRIC. I'm here to tell you about the "What if Your Baby?" website which we've created. The site provides new parents with information and reassurance that living with a limb difference is possible and can be a rewarding experience.
There are videos and articles from parents of limb different children and individuals who, like myself, who were born this way. Finding out a child is limb different generates a multitude of questions for parents. We know answers to these questions are scattered across the web.
Before we built the site we conducted a survey and found parents taking on the care of a child with limb difference struggled to get information. We also learned that medical staff involved didn't know where to send families to find out what it's like to live with a limb difference.
As technology improves, more and more parents are discovering their baby may be limb different before they're born. Our site is here to provide answers and access to a community who can share their own experiences. We believe that women have a right to determine what happens to their bodies. Whatever decision a woman makes, if it's an informed decision then it's going to be the right one. We're absolutely not a pro-life organisation.
There's lots of information on this site, but if you have a question which isn't answered then please do contact us. It might be something other people want to know and we've missed it. If you are personally affected - you might consider writing something for us or recording your own video so we can share this too.